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CITATIONS

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1. Helmick CG, Felson DT, Lawrence RC, et al. National Arthritis Data Workgroup. Estimates of the prevalence of arthritis and other rheumatic conditions in the United States, Part I. Arthritis Rheum 2008;58: 15-25.
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2. Vivino F. B. (2017). Sjogren's syndrome: Clinical aspects. Clinical immunology (Orlando, Fla.), 182, 48–54. https://doi.org/10.1016/j.clim.2017.04.005
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3. Brito-Zerón, P., Theander, E., Baldini, C., Seror, R., Retamozo, S., Quartuccio, L., Bootsma, H., Bowman, S. J., Dörner, T., Gottenberg, J. E., Mariette, X., Bombardieri, S., de Vita, S., Mandl, T., Ng, W. F., Kruize, A. A., Tzioufas, A., Vitali, C., Buyon, J., Izmirly, P., … Eular Sjögren Syndrome Task Force (2016). Early diagnosis of primary Sjögren's syndrome: EULAR-SS task force clinical recommendations. Expert review of clinical immunology, 12(2), 137–156. https://doi.org/10.1586/1744666X.2016.1109449
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4. Criswell, LA, Shiboski, C H, Shiboski, SC, Labetoulle, M, Lietman,TM, Rasmussen, A, … Mariette, X. (2016).  American College of Rheumatology / European League Against Rheumatism Classification Criteria for Primary Sjogren’s Syndrome.Arthritis Rheum 2017; 69(1): 35-45.
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5.Bournia V-K, Vlachoyiannopoulous PG. Subgroups of Sjogren syndrome patients according to serologic profiles. Journal of Autoimmunity 2012;39: 15-26.
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6/ Didlier K, Bloko L, et al. Autoantibodies Associated with Connective Tissue Diseases: What Meaning for Clinicians? Front Immunol 2018;9: 1-20.
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7. Carsons S (1998) The New Sjogren’s Syndrome Handbook Carsons,S, Harris E (Eds.)  New York: The Medical Workup of Sjogren's Syndrome.  Oxford University Press.
 

8.  Demarchi J, Papasidero S, Medina,MA, et al. Primary Sjogren’s syndrome: Extraglandular manifestations and hydroxychloroquine therapy. Clin Rheum 2017;36(11): 2455-2460.

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9. Shen, L., Suresh, L., Lindemann, M., Xuan, J., Kowal, P., Malyavantham, K., & Ambrus, J. L., Jr (2012). Novel autoantibodies in Sjogren's syndrome. Clinical immunology (Orlando, Fla.), 145(3), 251–255. h

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10. Ng, WF (ed). (2016) Sjogren's Syndrome. Oxford, UK: Oxford University Press

 

11. Baldini C, Ferro F, Elefante E. Bombardieri S. Biomarkers for Sjogren’s Syndrome. Biomark Med 2018;12(3): 275-286.

https://www.ncbi.nlm.nih.gov/pubmed/29460647

 

12.Ramos-Casals, M., Brito-Zerón, P., Seror, R., Bootsma, H., Bowman, S. J., Dörner, T., Gottenberg, J. E., Mariette, X., Theander, E., Bombardieri, S., De Vita, S., Mandl, T., Ng, W. F., Kruize, A., Tzioufas, A., Vitali, C., & EULAR Sjögren Syndrome Task Force (2015). Characterization of systemic disease in primary Sjögren's syndrome: EULAR-SS Task Force recommendations for articular, cutaneous, pulmonary and renal involvements. Rheumatology (Oxford, England), 54(12), 2230–2238. https://doi.org/10.1093/rheumatology/kev200
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13. Sheikh S, Shaw-Stiffel T. The gastrointestinal manifestations of Sjogren’s syndrome. Am J Gastroenterol 1995; 90(1): 9-14.
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14. Fox RI. Advances in understanding, diagnosing and treating Sjogren syndrome.

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15. Beckman KA, Luchs J, Milner MS, Ambrus JL Jr. The potential role for early biomarker testing as part of a modern, multidisciplinary approach to Sjogren’s syndrome diagnosis. Adv Ther 2017;34(4): 799-812.

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16. Ferro F, Vagelli R, Bruni C, Cafaro G, Marcucci E, Bartoloni E, Baldini C. One year in review 2016: Sjogren’s syndrome. Clin Exp Rheumatol 2016;34: 161-171.

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17. Fisher BA, Jonsson R, Daniels T, Bombardieri M, Brown R, Morgan P, Bombardieri S…Barone F on behalf of the Sjogren’s histopathology workshop group, EULAR Sjogren’s syndrome study group. Standardization of labial salivary gland histopathology in clinical trials in primary Sjogren’s Syndrome. Ann Rheum Dis 2017;76: 1161-1168.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5530351/

 

18. Fox, PC. Is a lip biopsy 100 % accurate? The Moisture Seekers, March 2008.(p.17)

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19. Serin G, Karabulut G, Kabasakal Y, Kandiloglu G, Akalin T. The importance of minor salivary gland biopsy in Sjogren syndrome diagnosis and the clinicopathological correlation. Turk Patoloji Derg. 2016;32(2):65-9.
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20. Reksten TR, Jonsson MV. Sjogren’s syndrome: An update on epidemiology and current insights on pathophysiology. Oromaxillofacial Surg Clin N Am 2014;26(1): 1-12 
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21. Akpek EK, Bunya VY, Saldanha IF. Ocular manifestations of primary Sjogren’s: what you don’t know might surprise you. Sjogren’s Quarterly; 13 (3) Summer 2018.
 

22. Hammitt KM, Naegeli AN, van den Broek, RWM, Birt, JA. Patient burden of Sjogren’s: a comprehensive literature review revealing the range and heterogeneity of measures used in assessments of severity. Rmdopen2017; 3(2)-e000443 

https://rmdopen.bmj.com/content/3/2/e000443
 

23. Rasmussen A, Radfar L, Lewis D, Grundahl K, Stone DU, Kaufman CE, … Scofiled RH. Previous diagnosis of Sjogren’s syndrome as rheumatoid arthritis or systemic lupus erythematosus. Rheumatology 2016 Jul;55(7): 1195-201.
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24. Brito-Zeron, P, Ramos-Casals M.Systemic Sjogrens: More than a sicca disease.

https://www.the-rheumatologist.org/article/systemic-sjgrens-more-than-a-sicca-disease/ 
 

25. Sjogren’s Syndrome Foundation. Breakthrough Goal survey results 2016. Polaris Marketing Research; 2016.

 

26. Ng, W. F., & Bowman, S. J. (2010). Primary Sjogren's syndrome: too dry and too tired. Rheumatology (Oxford, England), 49(5), 844–853. https://doi.org/10.1093/rheumatology/keq009
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27. Segal, B., Bowman, S. J., Fox, P. C., Vivino, F. B., Murukutla, N., Brodscholl, J., Ogale, S., & McLean, L. (2009). Primary Sjögren's Syndrome: health experiences and predictors of health quality among patients in the United States. Health and quality of life outcomes, 7, 46. https://doi.org/10.1186/1477-7525-7-46

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28. Dusenbery, M.  Doing Harm. 2018, New York: HarperCollins
 

29. http://simpletasks.org/wp-content/uploads/2018/08/Rheumatic-Disease-Report-Card-US.pdf
 

30. Brito-Zeron P, Ramos-Casals M, et al. Predicting adverse outcomes in primary Sjogren’s syndrome: identification of prognostic factors. Rheumatology 2007;46:1359-1362
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32. McCoy SS, Baer AN.Neurological Complications of Sjogren’s Syndrome: Diagnosis and Management. Curr Treatm Opt Rheumatol 2017; 3(4):275-288
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33. Goodman BP, Crepeau A, Dhawan PS, Khoury JA, Harris L. Spectrum of autonomic nervous system impairment in Sjogren syndrome. The Neurologist 2017;22:127-130.
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34. Bunya, VY, Fernandez, KG et al. Survey of ophthalmologists regarding practice patterns for dry eye and Sjogren syndrome.  Eye & Contact Lens 2018;44:S196-S201.
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35. Akpek EK, Mathews, P et al. Ocular and systemic morbidity in a longitudinal cohort of Sjogren’s syndrome  Ophthalmology 2015;122:56-61
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36. Kabasakal Y, Kitapcioglu G et al.  Criteria sets for primary Sjogren’s syndrome are not adequate for those presenting with extraglandular organ involvements as their dominant clinical features.  Rheumatol Int (2017) 37:675–684
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37. Seror R, Bowman SJ, Brito-Zeron P…Mariette X, on behalf of the EULAR Sjogren’s Task Force.EULAR Sjogren’s Syndrome disease activity index (ESSDAI): a user guide. RMD Open 2015;1:e000022.
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38. Ramos-Casals, M., Brito-Zerón, P., Solans, R., Camps, M. T., Casanovas, A., Sopeña, B., Díaz-López, B., Rascón, F. J., Qanneta, R., Fraile, G., Pérez-Alvarez, R., Callejas, J. L., Ripoll, M., Pinilla, B., Akasbi, M., Fonseca, E., Canora, J., Nadal, M. E., de la Red, G., Fernández-Regal, I., … Autoimmune Diseases Study Group (GEAS) of the Spanish Society of Internal Medicine (SEMI) (2014). Systemic involvement in primary Sjogren's syndrome evaluated by the EULAR-SS disease activity index: analysis of 921 Spanish patients (GEAS-SS Registry). Rheumatology (Oxford, England), 53(2), 321–331. https://doi.org/10.1093/rheumatology/ket349

https://www.ncbi.nlm.nih.gov/pubmed/24162151

 

39. Flament T, Bigot A Chaigne et al. Pulmonary manifestations of Sjogren’s syndrome. European Respiratory Review 2016; 25: 110-123   
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40. Alpek  EK, Bunya VY, Saldanha IJ.  Sjogren’s Syndrome: More than just dry eye. Cornea 2019 Jan 22.  
https://www.ncbi.nlm.nih.gov/pubmed/30681523

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41. Tiensvoll AB, Goransson LG. High headache-related disability in patients with systemic lupus erythematosus and primary Sjogren’s syndrome.  Eur J Neurol 2014;21(8):1124-30
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42. Brito-Zerón, P., Baldini, C., Bootsma, H., Bowman, S. J., Jonsson, R., Mariette, X., Sivils, K., Theander, E., Tzioufas, A., & Ramos-Casals, M. (2016). Sjögren syndrome. Nature reviews. Disease primers, 2, 16047. https://doi.org/10.1038/nrdp.2016.47

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43. Sutcliffe, N., Stoll, T., Pyke, S., & Isenberg, D. A. (1998). Functional disability and end organ damage in patients with systemic lupus erythematosus (SLE), SLE and Sjögren's syndrome (SS), and primary SS. The Journal of rheumatology, 25(1), 63–68.Sutcliffe N, Stoll T et al. Functional disability and end-organ damage in patients with systemic lupus and Sjogren’s syndrome. J Rheumatol 1998;25(1):63-68  

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44. Strömbeck B, Ekdahl C, Manthorpe R, et al. Health-related quality of life in primary Sjögren’s syndrome, rheumatoid arthritis and fibromyalgia compared to normal population data using SF-36. Scand J Rheumatol. 2000; 29(1):20–281.
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45. Mirouse A, Seror, Vicaut E… Mekinian A on behalf of Club Rheumatismes Inflammation and SNFMI. Arthritis in primary Sjogren’s syndrome: Characteristics, outcome, and treatment from a French multicenter retrospective study. Autoimmun Rev. 2019 Jan;18(1):9-14
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46. Wallace, DJ. (2012). Sjogren’s Syndrome Foundation. Oxford, UK: Oxford University Press.

 

47. Both, T., Dalm, V. A., van Hagen, P. M., & van Daele, P. L. (2017). Reviewing primary Sjögren's syndrome: beyond the dryness - From pathophysiology to diagnosis and treatment. International journal of medical sciences, 14(3), 191–200. https://doi.org/10.7150/ijms.17718                       
https://pubmed.ncbi.nlm.nih.gov/28367079  (Open Access)      

48.Tjensvoll AB.(2016). Headache in systemic lupus erythematosus and primary Sjogren’s syndrome.

(Doctoral dissertation, University of Bergen -link no longer available)
 

49. Ng W-F, Stangroom AJ, Davidson A, Wilton K, Mitchell S, Newton JL. Primary Sjogrens syndrome is associated with impaired autonomic response to orthostasis and sympathetic failure. Q J Med 2012; 105:1191-1199.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3508582/     (Open Access)

 

50. Newton, J. L., Frith, J., Powell, D., Hackett, K., Wilton, K., Bowman, S., Price, E., Pease, C., Andrews, J., Emery, P., Hunter, J., Gupta, M., Vadivelu, S., Giles, I., Isenberg, D., Lanyon, P., Jones, A., Regan, M., Cooper, A., Moots, R., … UK primary Sjögren's syndrome registry (2012). Autonomic symptoms are common and are associated with overall symptom burden and disease activity in primary Sjogren's syndrome. Annals of the rheumatic diseases, 71(12), 1973–1979. https://doi.org/10.1136/annrheumdis-2011-201009Newton, JL, Frith J, Powell … Ng, WF on behalf of the UK primary Sjogren’s syndrome registry. Autonomic symptoms are common and are associated with overall symptom burden and disease activity in primary Sjogren’s Syndrome. Ann Rheum Dis 2012;71: 1973-1979

https://www.ncbi.nlm.nih.gov/pubmed/22562982     (Open Access)

 

51. Koh JH, Kwok SK, Lee Jet al.  Autonomic dysfunction in primary Sjogren’s syndrome: a prospective cohort analysis of 154 Korean patients. Korean J Intern Med 2017;32:165-173
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52. Mori K, Iijima M, Koike H…Sobue G.The wide spectrum of clinical manifestations in Sjogren syndrome-associated neuropathy. Brain 2005; 128: 2518-2534.
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53. Kovacs L, Paprika, D, Takacs R,. Pokorny G. Cardiovascular autonomic dysfunction in primary Sjogren’s syndrome. Rheumatology 2004;43(1):95-99

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54. Stojan, G., Baer, A. N., & Danoff, S. K. (2013). Pulmonary manifestations of Sjögren's syndrome. Current allergy and asthma reports, 13(4), 354–360. https://doi.org/10.1007/s11882-013-0357-9
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55. Ocon Aj, Messer ZR, Medow MS, Stewart JM. Increasing orthostatic stress impairs neurocognitive functioning in chronic fatigue syndrome. Clin Sci 2012: 122 (5):227-238.

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56.  Vivino, F. B., Carsons, S. E., Foulks, G., Daniels, T. E., Parke, A., Brennan, M. T., Forstot, S. L., Scofield, R. H., & Hammitt, K. M. (2016). New Treatment Guidelines for Sjögren's Disease. Rheumatic diseases clinics of North America, 42(3), 531–551. https://doi.org/10.1016/j.rdc.2016.03.010

https://pubmed.ncbi.nlm.nih.gov/27431353/        (Open Access)


57.Price EH, Rauz S, Tappuni AR… Bowman, SJ; on behalf of the British Society for Rheumatology Standards, Guideline and Audit Working Group. The British Society for Rheumatology guideline for management of adults with primary Sjogren’s syndrome. Rheumatology. 2017: Oct 1;56(10):1828 
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58. Price EJ, Baer AN. How to treat Sjogren’s syndrome. Rheumatology, 2019, Feb. 15. (epub ahead of print)

https://pubmed.ncbi.nlm.nih.gov/30770917/

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59. Thomas Jr., DE. The Lupus Encyclopedia, a Comprehensive Guide for Patients and Families. 2014. Johns Hopkins University Press.

60. Hernández-Molina, G., Valim, V., Secco, A., Atisha-Fregoso, Y., Guerra, E., Adrover, M., Lage Santos, A. J., & Catalán-Pellet, A. (2018). Do antimalarials protect against damage accrual in primary Sjögren's syndrome? Results from a Latin-American retrospective cohort. Clinical and experimental rheumatology, 36 Suppl 112(3), 182–185.

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61.  Brito-Zerón, P., Kostov, B., Solans, R., Fraile, G., Suárez-Cuervo, C., Casanovas, A., Rascón, F. J., Qanneta, R., Pérez-Alvarez, R., Ripoll, M., Akasbi, M., Pinilla, B., Bosch, J. A., Nava-Mateos, J., Díaz-López, B., Morera-Morales, M. L., Gheitasi, H., Retamozo, S., Ramos-Casals, M., & SS Study Group, Autoimmune Diseases Study Group (GEAS), Spanish Society of Internal Medicine (SEMI) (2016). Systemic activity and mortality in primary Sjögren syndrome: predicting survival using the EULAR-SS Disease Activity Index (ESSDAI) in 1045 patients. Annals of the rheumatic diseases, 75(2), 348–355. https://doi.org/10.1136/annrheumdis-2014-206418

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62. Skopouli FN, Dafni U, Ioannidis JP, Moutsopoulos HM. Clinical evolution, and morbidity and mortality of primary Sjogren's syndrome. Semin Arthritis Rheum, 2000 Apr; 29 (5):296-304

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63. Retamozo, S., Acar-Denizli, N., Rasmussen, A., Horváth, I. F., Baldini, C., Priori, R., Sandhya, P., Hernandez-Molina, G., Armagan, B., Praprotnik, S., Kvarnstrom, M., Gerli, R., Sebastian, A., Solans, R., Rischmueller, M., Pasoto, S. G., Valim, V., Nordmark, G., Kruize, A., Nakamura, H., … Sjögren Big Data Consortium (2019). Systemic manifestations of primary Sjögren's syndrome out of the ESSDAI classification: prevalence and clinical relevance in a large international, multi-ethnic cohort of patients. Clinical and experimental rheumatology, 37 Suppl 118(3), 97–106.
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64. James, J. A., Guthridge, J. M., Chen, H., Lu, R., Bourn, R. L., Bean, K., Munroe, M. E., Smith, M., Chakravarty, E., Baer, A. N., Noaiseh, G., Parke, A., Boyle, K., Keyes-Elstein, L., Coca, A., Utset, T., Genovese, M. C., Pascual, V., Utz, P. J., Holers, V. M., … St Clair, E. W. (2020). Unique Sjögren's syndrome patient subsets defined by molecular features. Rheumatology (Oxford, England), 59(4),860–868. https://doi.org/10.1093/rheumatology/kez335

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65. Imgenberg-Kreuz J, Almlof JC, Leonard D,...Nordmark G. Shared and unique patterns of DNA methylation in systemic lupus erythematosus and primary Sjogren's Syndrome. Front Immunol 2019;10:1686.

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66. Nocturne G, Mariette X.  B cells in the pathogenesis of primary Sjogren syndrome. Nat Rev Rheumatol 2018 Mar;14(34):133-145

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67. Bombardieri M, BaldiniC ...Baer AN. Highlights of the 14th International Symposium on Sjogren's Syndrome. Clin Exp Rheumatol 2018;36 (Suppl. 112): S3-S13:675-684.  

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69. Akpek EK, Bunya VY, Saldanha IJ. Sjogren's syndrome: more than just dry eye. Cornea 2019;00:1-4.

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72. Harris VM, Scofield RH, Sivils KL. Genetics in Sjogren's syndrome: where are we and where will we go. Clin Exp Rheumatol 2019; 37 (Suppl. 118): S234-S239.

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73. Tsirves GK, Voulgari PV, Pelechas E, Asimakopoulos AD, Drosos AA. Cochlear involvement in patients with systemic autoimmune rheumatic diseases: a clinical and laboratory comparative study. Eur Arch Otorhinolayrngo. 2019;276(9):2419-2426

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78. Alunno, A., Bartoloni, E., Valentini, V., La Paglia, G. M. C., Valentini, E., Leone, M. C., Marcucci, E., Cafaro, G., Bonifacio, A. F., Luccioli, F., & Gerli, R. (2018). Discrepancy between subjective symptoms, objective measures and disease activity indexes: the lesson of primary Sjögren's syndrome. Clinical and experimental rheumatology, 36 Suppl 112(3), 210–214.
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79. Vivino, F. B., Bunya, V. Y., Massaro-Giordano, G., Johr, C. R., Giattino, S. L., Schorpion, A., Shafer, B., Peck, A., Sivils, K., Rasmussen, A., Chiorini, J. A., He, J., & Ambrus, J. L., Jr (2019). Sjogren's syndrome: An update on disease pathogenesis, clinical manifestations and treatment. Clinical immunology (Orlando, Fla.), 203, 81–121. https://doi.org/10.1016/j.clim.2019.04.009

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80. Maciel, G., Servioli, L., Nannini, C., Berti, A., Crowson, C. S., Achenbach, S. J., Matteson, E. L., & Cornec, D. (2018). Hospitalisation rates among patients with primary Sjögren's syndrome: a population-based study, 1995-2016. RMD open, 4(1), e000575. https://doi.org/10.1136/rmdopen-2017-000575

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83. Al-Ezzi M, Khan K, Tappuni AR. Is the taste acuity affected by oral dryness in primary Sjogren's syndrome patients?  Oral Dis Dec 19 (Epub ahead of print) 

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84. Trevisani VFM, Pasoto SG, Fernandes MLMS...Valim V. Recommendations from the Brazilian society of rheumatology for the diagnosis of Sjogren's syndrome (Part I): glandular manifestations (systematic review).  Advances in Rheumatology 2019; 59:58           . 

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264. Al-Naseem, A., Sallam, A., Choudhury, S., & Thachil, J. (2021). Iron deficiency without anaemia: a diagnosis that matters. Clinical medicine (London, England), 21(2), 107–113. https://doi.org/10.7861/clinmed.2020-0582
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Updated 10-11-2024

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