SJOGREN'S ADVOCATE

Celiac disease is common in Sjogren's patients. Every Sjogren's patient should be screened for celiac disease, regardless of symptoms.

Pulmonary hypertension is no longer considered rare in Sjogren's. Early detection and treatment are critical to improving outcomes.

“Right now it would be a step forward just to get a standardized approach to systemic symptoms and have them recognised. Many patients don't get any systemic evaluation at all.”   ~Malin, RN, and Sjogren’s patient, March 2023. This comment is exactly why I created Sjogren’s Advocate . Most of Sjogren's is systemic, not dryness. Yet, as Malin states, "many patients don't get any systemic evaluation at all". Thanks to your generous donations, Dr. Bexi Lobo and I have upgraded

Understanding manifestations, signs, and symptoms will help you talk with your doctors about Sjogren’s care that goes beyond sicca.

Learn about the difference between Sjogren's manifestations and comorbidities, and why they are both important to address.

Lifestyle changes help many Sjogren's patients feel better. Learn about credible sources of information here.

Learn how self-advocacy helped me get diagnosed and treated for POTS, an autonomic disorder.

Sjogren's patients are at increased risk of strokes, heart attacks, and other cardiovascular diseases. Much can be done to reduce that risk.

What you put on your skin is as important as what you eat and breathe, especially with dry skin that comes with Sjogren's.

What you put on your skin, frequently ends up in your body. Learn about how skincare products can impact your health.

Learn why sun protection is important for Sjogren's patients.

Many people with Sjogren's are told they have functional disorders, when their symptoms are direct, physical Sjogren's manifestations.

POTS and other autonomic disorders are not caused by anxiety or deconditioning. Learn how to counter myths about Sjogren's and dysautonomia.

Is it POTS or orthostatic hypotension (OH)? Learn how to tell the difference.

POTS is a common cause of standing intolerance in Sjogren's. It is important to rule out mimics including other autonomic disorders.

POTS is a common neurological feature of Sjogren's. It is important to rule out other possible causes of your symptoms.

Learn how a healthy diet can help Sjogren's. Find links to credible resources for nutrition information.

The Sjogren's is Never "Just Sicca" handout will you work with clinicians who are unfamiliar with the systemic aspects of the disease.

Clinicians who believe the" nuisance sicca disease" myth are being led astray by outdated assumptions about the disease.

The most important thing for clinicians to know about Sjogren's is that it is a serious systemic disease.