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New Self-Advocacy Tool – It’s Sjogren’s Disease
The official name change to Sjogren's disease can be used to encourage clinicians to address the serious, systemic nature of Sjogren's.
Sarah Schafer, MD
Nov 16, 20243 min read
2,228 views


Breast Cancer and Sjogren's - A Tale of Two Diseases
Sjogren's patients deserve the same level of knowledge, compassion, and coordinated care that breast cancer patients are offered.
Sarah Schafer, MD
May 4, 20246 min read
1,783 views


Why Is It So Hard To Get Diagnosed?
Sjogren's diagnosis is often long delayed. Learn how to use the Sjogren's Foundation Diagnosis Handout to advocate for diagnosis.
Sarah Schafer, MD
Mar 29, 20245 min read
3,738 views


12 Reasons People With Sjogren's Don't Get Diagnosed
Most people with Sjogren's remain undiagnosed due to lack of clinician training and awareness.
Sarah Schafer, MD
Sep 3, 20237 min read
11,189 views


My POTS diagnosis: worth the struggle
Learn how self-advocacy helped me get diagnosed and treated for POTS, an autonomic disorder.
Sarah Schafer, MD
Dec 12, 20224 min read
7,053 views


All in Your Head?
Many people with Sjogren's are told they have functional disorders, when their symptoms are direct, physical Sjogren's manifestations.
Sarah Schafer, MD
Aug 5, 20226 min read
8,289 views


Why doesn't my doctor understand Sjogren's?
Clinicians who believe the" nuisance sicca disease" myth are being led astray by outdated assumptions about the disease.
Sarah Schafer, MD
Jan 3, 20223 min read
3,465 views


Countering the Sjogren's = Sicca Myth
The most important thing for clinicians to know about Sjogren's is that it is a serious systemic disease.
Sarah Schafer, MD
Dec 8, 20213 min read
2,761 views


Sjogren's Advocate pages are not handouts
Learn how to choose handouts that work well for clinician education, and why you can trust the information on Sjogren's Advocate.
Sarah Schafer, MD
Nov 18, 20212 min read
2,873 views


How patients experience Sjogren's
Patients often a hard time finding doctors who understand Sjogren's and take it seriously.
Sarah Schafer, MD
Nov 11, 20215 min read
4,379 views


The new ICD-10 codes: a low-key way to educate clinicians
The new ICD-10 codes for Sjogren's offer an easy, low-key want to educate clinicians about the systemic nature of the disease.
Sarah Schafer, MD
Oct 9, 20212 min read
3,326 views


Spotlight on rheumatology education- You can make a difference
Rheumatologists have few opportunities to stay abreast of Sjogren’s knowledge. Sjogren’s is neglected at every level of medical education....
Sarah Schafer, MD
Sep 24, 20212 min read
1,316 views
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