SJOGREN'S ADVOCATE

Fatigue, cognitive problems, and exercise intolerance may be caused by Sjogren’s, but they could also be indicators of iron deficiency.

It often surprises people that even MDs can experience dismissive treatment when their doctors do not understand their complex symptoms.

Sjogren's patients deserve the same level of knowledge, compassion, and coordinated care that breast cancer patients are offered.

Sjogren's diagnosis is often long delayed. Learn how to use the Sjogren's Foundation Diagnosis Handout to advocate for diagnosis.

Most people with Sjogren's remain undiagnosed due to lack of clinician training and awareness.

A negative SSA doe not rule out Sjogren's. There is no one test for diagnosing Sjogren's.

Sjogren's often impacts the gastrointestinal tract. Many symptoms are neurologically based but mistaken for IBS.

Every Sjogren's patient should have routine screening for liver disease.

Celiac disease is common in Sjogren's patients. Every Sjogren's patient should be screened for celiac disease, regardless of symptoms.

Pulmonary hypertension is no longer considered rare in Sjogren's. Early detection and treatment are critical to improving outcomes.

Learn how self-advocacy helped me get diagnosed and treated for POTS, an autonomic disorder.

Many people with Sjogren's are told they have functional disorders, when their symptoms are direct, physical Sjogren's manifestations.

Clinicians who believe the" nuisance sicca disease" myth are being led astray by outdated assumptions about the disease.

Everyone with Sjogren's, including seronegative patients, should be routinely monitored for systemic manifestations of the disease.

Once Sjogren's is diagnosed, the fibromyalgia label should be dropped.

Sjogren's is called autoimmune, but it is not that simple. It is a complex, systemic immune-mediated disease.

The term "secondary Sjogren's" is inaccurate and misleading. Sjogren's is Sjogren's, alone or with another disease.

Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...

Medical terms used to describe Sjogren's are often misleading, and reinforce dismissive attitudes about the disease.

Do you have any of these? 1. Relentless, profound physical fatigue 2. Brain fog: Mental fatigue/cognitive changes 3. Dizziness or...